Reblogged from Diary of a Benefits Scrounger:
Please share this article anywhere and everywhere you can. Thank you x As many of you may know by now, last night was the Big Benefits Row on Channel 5.
"Roll up! Roll up for the spectacliar sight! Real life poor people for your viewing delight!" I
was contacted by the show's producers early. Would I be on a panel to
discuss welfare changes? They assured me it would be balanced and to
their credit, I do think they worked very hard to make sure a range of
views were represented in a way that shows like Benefit Street and On
Benefits and Proud neglected entirely. Had I been a beleaguered
austerity-junkie audience person, I think I would have had a rare taste
of how it feels to find oneself outnumbered.
As the days passed
before the show, I got that sneaking feeling I was being downgraded.
Perhaps I should explain. I've done a lot of media now. Newsnight, BBC
News, Sky, Radio 4, Radio 5 Live, LBC and many, many more. The pattern
is almost always the same. I've learnt never to tweet about bookings
until I'm in the actual studio getting miked up. For every 5 approaches,
I suppose one might actually come to something.
Initially, the
plan is always for real a debate, or a full feature on welfare cuts or a
hard hitting doumentary. As the producers of the shows try to get
guests to appear to discuss disability welfare cuts in any serious kind
of way, they realise the task is almost impossible.
For some time
now, the DWP and No.10 have refused to put anyone up against me. (and
presumably other campaigners) at all. At first, 3 (all BBC) went ahead,
but the various researchers were all genuinely shocked at the lack of
government engagement. All said they'd never known such blanket refusals
to debate an issue.
Perhaps more sinisterly, they were
shocked that invariably the DWP refused to take part unless the stories
were edited their way. Iain Duncan-Smith has written repeatedly and
furiously to the BBC about their lack of balance in reporting welfare
issues. Anyone who follows the debate with even a flutter of fleeting
interest will know just how ironic that is. If ever there has been an
issue so poorly reported, with so much ignorance and so many lies, the
current "welfare" debate must be it.
But it's clever
isn't it? Refuse to debate at all and generally it will mean there can
be no debate. You can shut down any and all opposition simply by saying
nothing at all.
Anyway, I digress.
Even if a show
does get
made, invariably it gets watered down to the point of, well, no point
at all really. An hour becomes half, which then becomes 15 minutes,
which then becomes a 3 minute bulletin. A coalition MP becomes a
"governmnet spokesperson" which then becomes an intern, which then ends
almost without fail, with a member of the Taxpayers Alliance. And it's
just too easy to make them look silly, they do most of the work
themselves.
I've been edited to make me look like a "shirker",
I've hauled my crohn's riddled butt all the way to London only to be
told "Oh, sorry, it's not happening now, did no-one let you know?" I've
been booked for shows under the pretence that a particular
subject-du-jour is the subject only to be ambushed scrounger bashing
vitriol the moment we go live. (Yes Nick Ferrari, I do mean you.) I've
been made to walk to locations, despite pointing out repeatedly that I
can't walk far or stand for very long. "If you could just manage....."
I've
uncovered vast and shocking welfare stories only to find I can't get
them published anywhere. Bumped for Egypt. Bumped for Syria. Bumped for
chickens in cat outfits. (That last one's not even sarcasm!?!)
Repeatedly I hear in a loop "But welfare isn't a story."
Well no,
why would it be? The current social security cuts are stripping away an
eye-watering £28 BILLION from the support and services sick and
disabled people rely on just to get through the day. That's a full FIFTH
of the entire deficit reduction plan falling on those who often have no
voice to defend themselves. One pound in every five!!!
In all,
I've found dealing with the media to be the most revealing and
frustrating part of the whole "being-a-campaigner" thingy. You have to
get REALLY tough REALLY quickly and be prepared for an infinite prism of
disappointments and frustration.
And so I bumped down those now familiar media steps last week with depressing familiarity.
First
I would be on the panel. Then the panel became the front row with
assurances all of the main invitees would be sitting there with me and
all would get a fair say. I was an "invited guest" and "disabled
people's voices would be heard blah-blah-diddly-blah". And so yet
another hour became a 15 minute section of the show from which I might
get to throw in a 3 minute soundbite or two. This in turn became "You'll
get a chance to speak from the audience" which fizzled out into "Ah,
wheelchair issues mean you can't sit here/there/anywhere so we'll tuck
you in that dark the corner out of the way."
As I said, I've been
around the media block a few times now. 4 years of blogging and
campaigning is actually 56 in human years. I was emphatic with the
producers from the start that I wouldn't waste my
energy spoons getting to London for nothing. They assured me repeatedly that that wouldn't be the case.
As
it happened, I also had a hospital appointment in London yesterday at
3pm. As only us sick people can really know, that is traumatic enough in
itself. It takes 3 hours for Dave to drive me to central London and 3
hours to get home. Ordinarily, that alone would exhaust me for days
after the actual event but instead, yesterday, I chose to wait 6 HOURS
for the Big Benefits Row to start. By 8pm, every one of my loved-ones
know not to phone me or expect intelligent reponses. Waiting up to do a
show that starts at 9pm is significant in my world.
Sickies like
me will also know just how much it costs in emotional energy to even
contemplate a day like I had planned for yesterday. The only way I can
get through them is on adrenaline. Bodies like mine, so used to ignoring
physical crisis signals, compensate the only way they know how. As the
adrenaline floods through your body it makes you feel shaky and sick. I
can't eat anything significant, I get a bit hyper. That good old fight
or flight response recalls echos of demands from its genetic history. I
wouldn't even think about eating anything significant before a show like
The Big Benefits Row anyway, just in case it causes some involuntary
vomit to land on someone's shoes. (*Other bodily fluids also available
by request))
But our trials had barely started. Mik Scarlet
(Writer for Huffington post and the Independent) Jack Monroe (working
for Sainsbury's, ITN to name just a couple). Lisa Egan (Sky contact for
disability related welfare issues & an articulate, intelligent
blogger.) and I (Guardian, BBC & this little bloggy-woggy) all met
up beforehand to get something to eat and so arrived at the studio
together.
Having only needed to use a wheelchair for just under a
year, the reality of disabled access has shocked and appalled me too.
Did you know for instance that most trains only have ONE disabled space
and so can only take one wheelchair user? No, I had no idea either. And
did you know that you can't get in to most restaurants and shops despite
access being a legal responsibility? Nope, nor me. Or that supermaket
aisles often make it impossible to get around a shop independently? Or
that you can't use almost any of the London Underground?I didn't know
any of that stuff
When we got to the Channel 5 studio an epic
confuddle broke out. As I've also learnt, they often do when some people
are faced with several people on wheels all at once. They could only
take 3 wheelchairs. 4 would apparently tip the building over into a
dangerous and unforgivable fire risk. They couldn't evacuate four of us!
I'd
been trying not to cry for about two hours by this point and the only
way we were all going to get in was if I left my wheelchair in the foyer
and hobbled down to the basement studio. I was the only one who could
walk at all.
Once on the set, even bigger confuddlement broke out. "You can't
put them here, they're in the way of the cameraman" (I thought the "them" was a nice little dehumanizing detail eh?) "You can't let
them sit at the front, it makes
them
look too important" (I precis) etc etc. After at least 10 minutes of
this infathomable conundrum, Mik shouted to the audience who were now in
their seats ready for the show to begin. "Get a job they say?? Are you
watching this? Most of the time, we can't even get a bloody seat!"
I
noted with great irony that the panellists had to sit on a raised
platform anyway, so even if they had kept a disabled person on the
panel, it's unlikely they could have overcome the first and simplest of
barriers and actually got up on to the stage.
Already brimming
with brittle frustration, adding Edwina Curry and Katie Hopkins into the
mix with no off button took every ounce of professionalism I had to
survive without actually combusting.
Surprisingly, I thought the
debate was very good. If anything, it was biased in our favour for once.
Matthew Wright held Hopkins and Currie to account frequently and the
range of people who did get to speak were varied. I think it surprised
everyone when Rachael Johnson, (Boris' sister and editor of The Lady)
and Sam Delaney, (editor of Heat magazine) defended people who have to
rely on social security and presented some very helpful myth-busters
about "welfare".
However, I could barely breathe with pent up
frustration. As each part of the show went live again following an ad
break, I'd pray that something would be said about disability and every
time it wasn't, I deflated further and further (DON'T be a crybaby on
national TV...DON'T be a crybaby on national TV....DON'T be a crybaby on
national TV, repeat) How are you suppoed to have a debate about social
security and not include sick and disabled people? We rely on it more
than any other group! Here's a few facts, just in case you've never read
this blog before
- Disability Living Allowance (DLA) is being cut by 20%
- The criteria to qualify for DLA slashed has been by 60%
- 1 MILLION people are to be stripped of Employment and Support Allowance
- The Independent Living Fund has bee scrapped**
- 1500 people lost their jobs as Remploy factories were all closed
- Just 3% of the entire welfare budget goes to unemployed people
- Social
security fraud is around £1.2 Billion per year - less than half of 1%,
or 0.15% of total welfare budget. That's just £1.50 lost for every
thousand or 0.15% of the total welfare
- The DWP pay out much more in their own errors - 2.2 Billion
- A whopping £16 BILLION goes unclaimed, generally to avoid the stigma of "welfare"
- We have some of the toughest criteria for claiming social security in the developed world.
- Is
our UK social security systemn too generous? No again. In international
terms we come just 46th out of 51, paying some of the lowest benefits
anwhere
- 440,000 sick or disabled people will be hit by the Bedroom Tax. That's over 2 thirds.
The
very second the show ended I got Dave to bust me out of there without
even saying goodbye to MJ or Lisa or Mik. I cant recall another time
I've been such an emotional coward, but I just had to run away (well,
wheel away, but you get the idea)
As Dave pushed my official fire
risk chariot back to our car, I tweeted "Yes,I was kicked off the panel
at the last minute and no, of course there was no-one disabled person
in my place" #BigBenefitsRow
But just as he did, something
magical seemed to happen as we started the tedious drive home. My tweets
exploded all over twitter, it was all I could do to read them quickly
enough as they flooded in. Thousands and thousands of you, it was quite
awe inspiring. By midnight I was trending 4th in the UK
And
yet again my friends, we shall have to make our own news. If you've read
to this point, PLEASE don't close the page until you've shared it with
your networks. You can use the buttons just below to retweet or post it
to Facebook. But PLEASE, if you can support us in any way, sharing this
article can show producers of shows like the Big Benefits Row that we DO
have a voice, we DO matter.
As campaigners we've often reminded ourselves that "Alone we whisper, but together we shout."
I
imagine that the producers of last nights BBR got a better offer than
me. Someone with a higher profile who they thought might attract more
viewers. Some suggested it could be more sinister than that, but I'm
convinced that for most affluent, white, able-bodied producers, long
term ilness or disability simply doesn't come on to their radar. Another
genetically-programmed response means we simply cannot believe in our
own mortality or believe that any harm can ever cast shadows over our
lives.
We can show them - and the public - that on social media if nowhere else, sick and disabled people can -and will - be heard.